Pain
Living with Lupus53 total reviews
Comment from royowen
Pain of pain is the worst thing ever, it commands your whole attention, heaven knows how can one put it to the back of the mind I don't know, I'll pray for you anyway. Beautifully written Debi, blessings Roy
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reply by the author on 27-Aug-2023
Pain of pain is the worst thing ever, it commands your whole attention, heaven knows how can one put it to the back of the mind I don't know, I'll pray for you anyway. Beautifully written Debi, blessings Roy
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Comment Written 27-Aug-2023
reply by the author on 27-Aug-2023
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You are so right Roy, and you know I did not write this for pity, because you know that isn't me. I don't talk about my lupus very much, but after forty years it has me crippled. And many many surgeries have made little difference, so I came to conclusion that a crippled body does not have to escort a crippled mind. Positive thinking does make a difference. I did not write this for pity. Anyone who knows me knows that isn't me. I wrote about the pain that lupus has stricken my body with for the last forty years, to show what positive thinking can do. A crippled body does not have to escort a crippled mind.
I have been opioid free for five years now, after twenty years of harsh doses. Now I try to manage it with natural ways such as massage and acupuncture. I am writing about it now to tell that writing is such good therapy, especially when paired with the wonderful people here. It's a form of mind over matter and the peaceful surrounding here is so therapeutic. It cannot change the damage done or eliminate the pain but can help with a better outlook.
Thanks for being such a big part of my therapy, dear friend.
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You are such a blessing Debi, I?ll remember you this morning, well done
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I feel the same about you Roy! Thanks for all the kind words and the gift of prayers.
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I discussed your wonderful story with my early morning prayer partners, which includes my pastor friend, an 86 year old miracle working retired pastor/evangelist and a wise female saint, we sealed your testimony in prayer Debi, I appreciate you. YBIC, Roy
Comment from Sandra Stoner-Mitchell
Good morning Debi. :)) Is this about you? You have a good attitude towards it if it is. Don't let it win, let your sunny nature and sense of humour shine through and dampen down the pain. Rainbows are good! I'm so sorry if you are in so much pain, my friend. Life can be very testing at times. Prayers, hugs and lots of love coming your way. Sandra xxx
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reply by the author on 27-Aug-2023
Good morning Debi. :)) Is this about you? You have a good attitude towards it if it is. Don't let it win, let your sunny nature and sense of humour shine through and dampen down the pain. Rainbows are good! I'm so sorry if you are in so much pain, my friend. Life can be very testing at times. Prayers, hugs and lots of love coming your way. Sandra xxx
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Comment Written 27-Aug-2023
reply by the author on 27-Aug-2023
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Yes Sandra, it is me, but I've tried it all for the pain. Been from highest doses of opioids, to medical cannabis. And now I have you. You, my writing and this wonderful therapy. Its the best therapy in the world to take you away from yourself long enough to let the peace of the atmosphere help calm the nerves to give some relief. It's been the most beneficial therapy in 40 years.
Along with massage and other natural methods.
You are so good for me. Thank you for being such a big part of my mind over matter therapy. It doesn't help the damage the disease has done, but believe it or not has slowed it down. So thanks again, my sweet friend.
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I think you are an incredible lady, and an inspiration to us all. 🥰🥰xxx
Comment from Jay Squires
What a delicious four-line poem. You were able to cram so much philosophy and common sense into it. I really must begin reading more poetry -- and yours is a good place to start. Your poem would make a fine refrain to a song. I'm so glad you caught me with my sixes up instead of down around my ankles.
reply by the author on 29-Aug-2023
What a delicious four-line poem. You were able to cram so much philosophy and common sense into it. I really must begin reading more poetry -- and yours is a good place to start. Your poem would make a fine refrain to a song. I'm so glad you caught me with my sixes up instead of down around my ankles.
Comment Written 27-Aug-2023
reply by the author on 29-Aug-2023
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Sorry this is so late Jay, but I read it right away and wasn't able to answer right away. I welcome you to read my poetry any day. Except maybe last night, as I am sure you heard that everyone of your posts you ever wrote had only my words in them. If you weren't awake, and haven't heard, look up mine called Wayne and Wendy's Wacky Wedding. It was in everyone's portfolio. It wasn't my fault, but it happened to me nonetheless. I cried like a baby when they fixed it this morning and you got your work back.
So onto this one. I cannot thank you enough for this awesome review and comments. Thank you from the bottom of my heart. And then for you to honor me also with your six stars, I am so appreciative for it all. Thanks so very much, my dear friend
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Oh, I wish you had taken a screenshot of what happened. I can't make heads nor tails of it. Your words were in my posts? I don't understand that. What it means. I would share my portfolio any day with one of your poems -- then cry if they removed it! That is so bizarre.
Did Tom try to explain it to you? He must have been frantic, too. It could have been an international virus and he was just waiting for their call as to how much he had to pay them to remove it. But I read your poem. It would have been a sweet virus!
Jay
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I did take screenshots of some places like the voting booths and a few other places. I sent them to Terry right away this morning. I will ask him to share them with you. It was truly horrifying. It lit up the forum but everything was deleted this morning so I am thankful that I had them. I will tell Terry to send them to you. Thanks again, as you are so dang sweet. Tom didn't explain it, but just reassured me that it wasn't my fault.
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Good that Tom told you that it wasn't your fault, LOL, like you needed reassurance! This is so bizarre. You are one of the sweetest, most generous people on Fanstory. It is irony of the highest order that it should happen to you! You hang in there.