Pain
Living with Lupus53 total reviews
Comment from Joanne Gill-Maddick
This is a nicely written poem it' rhymes and flows nicely. Beautiful photo to compliment your words as well. It has a nice overall presentation. Good luck in the contest
reply by the author on 27-Aug-2023
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This is a nicely written poem it' rhymes and flows nicely. Beautiful photo to compliment your words as well. It has a nice overall presentation. Good luck in the contest
Comment Written 27-Aug-2023
reply by the author on 27-Aug-2023
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Thanks so much Joanne. It was hard for me to write, but as I saw the disease taking more and more, I needed to write this to get it out and as always, it did help some. Writing here and interacting with such great friends is a godsend. Thank you for being part of that for me and so many others. You are so special. Thanks also for the honor of your six stars. I appreciate it and you so much.
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Your so welcome my friend ❤️
Comment from LJbutterfly
As someone who suffers with daily pain, I find your poem uplifting and inspirational with a beautiful rainbow picture. Both massage and acupuncture have been helpful, but friendships gained on this site (like ours) has done wonders to lift spirits. Your four line poem for the contest, author's notes, and rainbow picture deliver a powerful message. Best wishes in the contest.
reply by the author on 27-Aug-2023
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As someone who suffers with daily pain, I find your poem uplifting and inspirational with a beautiful rainbow picture. Both massage and acupuncture have been helpful, but friendships gained on this site (like ours) has done wonders to lift spirits. Your four line poem for the contest, author's notes, and rainbow picture deliver a powerful message. Best wishes in the contest.
Comment Written 27-Aug-2023
reply by the author on 27-Aug-2023
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You are so very sweet, Lorraine. I so appreciate your dear comments for this poem and I am sorry you also live in pain. I hesitated on doing it but as the disease progresses to take more and more from me, I thought it was time to share with my friends.
Thanks so much for all of your kind words. They mean the world to me.
Comment from Pam Lonsdale
I can't get over the fact that you were on opioids for twenty years and kicked that. That had to be one of the hardest things you've ever done.
The saying about making lemonade out of lemons came to mind as I read this grownup version of that saying. Much respect for all you've managed to spin into positive living and thinking.
May your days be filled with beautiful rainbows:-)
reply by the author on 27-Aug-2023
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I can't get over the fact that you were on opioids for twenty years and kicked that. That had to be one of the hardest things you've ever done.
The saying about making lemonade out of lemons came to mind as I read this grownup version of that saying. Much respect for all you've managed to spin into positive living and thinking.
May your days be filled with beautiful rainbows:-)
Comment Written 27-Aug-2023
reply by the author on 27-Aug-2023
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You are so very sweet, Pam. I so appreciate your caring comments for this poem. I hesitated on doing it but as the disease progresses to take more and more from me, I thought it was time to share with my friends. It seems surgeries at my age are no longer as beneficial as they once were. I barely walk, (but thankful to be walking at all) and now my eye surgeries were both unsuccessful. In fact, vision was better before, yet they had to be done. The pain meds, opioids they pushed on me twenty years ago I feel also did some damage. So as much as I just didn't mean to be negative, I am thankful to be alive. I am stage four kidney disease and between the lupus and severe anemia, (tomorrow more blood transfusions) I seldom have good days anymore. I am telling you all of this because satan is telling me it is doubtful we will ever do that walk together. Yet I am so hopeful that we will.
My state of mind however is of joy and serenity in knowing there is an afterlife for me. But am I giving up here? Hell no! My goal of a walk is not over until it is over. So please don't give up on me either. I have been thru cancer where they were sure I would not make it, and I survived. Miracles happen. I know it seems like a lot, but that is what lupus does. It robs the life of all the organs it can get, and I never give up anything without a fight.
Thanks so much for all of your kind words. They mean the world to me.
Lol, sorry for the info over-load but that is where I am at, and since we had preliminary plans, I thought it only fair to tell you where I am at.
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I will be in Minnesota next May or June - probably for a month. I'm renting a vrbo apartment in uptown Minneapolis near my son, and I plan to live on my own for that time. Writing, getting into the city vibe - my husband has given me this extravagant gift. I'll be in touch, so maybe we can get together while I'm there. I would like that.
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Oh Pam, I would love that. I am only an hour away from Minneapolis, about ten miles from Buffalo. Maybe we can celebrate our birthday a few months early together.
Huge hugs!
Comment from jessizero
My mother is currently experiencing a flare-up episode of lupus. I have never experienced this myself, but I have seen how crippling it can be. I am impressed by you. Thank you for sharing.
reply by the author on 27-Aug-2023
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My mother is currently experiencing a flare-up episode of lupus. I have never experienced this myself, but I have seen how crippling it can be. I am impressed by you. Thank you for sharing.
Comment Written 27-Aug-2023
reply by the author on 27-Aug-2023
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Oh Jessi, your mother has lupus too? It is a very hard disease, isn't it?
It is possible that it may be hereditary, so please watch yourself carefully and if you start to have the symptoms, please get in and get checked. Yet it is so hard to diagnose. Has your mom lost any organs to it? I have and it is horrible, yet I still want to look for the bright side. I will say prayers for your mom too. God bless you Sweetie for your kind words and for being such a caring woman yourself. Your mom is very lucky to have you.
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Her uterus had vascular tissue from lupus, and she had to have it removed. She had thyroid cancer and had her gallbladder out, but that may or may not have been lupus. Mom has had a variety of health problems, but she has a sense of humor about it. I am blessed to have her.
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That sense of humor is top priority. I would love to know you and your mother.. tell her to keep looking on the bright side. But how could she not, she has you, doesn't she. Hugs to you both!!!
Comment from harmony13
The author's words have a powerful message! These words are clear,
descriptive and creative. I found the words of this poem. resonating with me. The poem brought back memories of what I told my clients -changing our thought can help us view people and situations differently. The poem flows and connects well. Thank you for the author's notes - they speak volumes! The artwork is awesome and compliments these words. Great Poem, Debi!
reply by the author on 27-Aug-2023
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The author's words have a powerful message! These words are clear,
descriptive and creative. I found the words of this poem. resonating with me. The poem brought back memories of what I told my clients -changing our thought can help us view people and situations differently. The poem flows and connects well. Thank you for the author's notes - they speak volumes! The artwork is awesome and compliments these words. Great Poem, Debi!
Comment Written 27-Aug-2023
reply by the author on 27-Aug-2023
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Thanks so much Maria. It was hard for me to write, but as I saw the disease taking more and more, I needed to write this to get it out and as always, it did help some. Writing here and interacting with such great friends is a godsend. Thank you for being part of that for me and so many others. You are so special.
Comment from Nicki Nance
A most uplifting little gem of a poem, much needed by a generation of people, many of whom are are now feeling physical pain from the lives they have lived. Great reminder to focus on the rainbow. I used to tell my clients not to organize their life around the worst thing in it.
reply by the author on 27-Aug-2023
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A most uplifting little gem of a poem, much needed by a generation of people, many of whom are are now feeling physical pain from the lives they have lived. Great reminder to focus on the rainbow. I used to tell my clients not to organize their life around the worst thing in it.
Comment Written 27-Aug-2023
reply by the author on 27-Aug-2023
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Thanks so much, Nicki. It was hard for me to write, but as I saw the disease taking more and more, I needed to write this to get it out and as always, it did help some. Writing here and interacting with such great friends is a godsend. Thank you for being part of that for me and so many others. You are so special.
Comment from Raul1
These are fair examples of taking away pain and it should be of thinking positive things. Excellent work! No mistakes found. I have enjoyed reading it. Thank you for sharing!
reply by the author on 27-Aug-2023
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These are fair examples of taking away pain and it should be of thinking positive things. Excellent work! No mistakes found. I have enjoyed reading it. Thank you for sharing!
Comment Written 27-Aug-2023
reply by the author on 27-Aug-2023
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Thanks so much, Raul. It was hard for me to write, but as I saw the disease taking more and more, I needed to write this to get it out and as always, it did help some. Writing here and interacting with such great friends is a godsend. Thank you for being part of that for me and so many others. You are so special.
Comment from LateBloomer
Hi Debi, pain can be debilitating, and it can affect everything that a person does, including their thinking ability. It's difficult for anyone to understand or comprehend another person's pain. Your poem reads and flows well, and your message is clear. Of special note:
think of rainbows instead of the rain
(Life is better when we can look on the brighter side, no matter how hard or difficult it may be.)
Well done. I love the rainbow photo. As this is a contest entry, I wish you good luck. Xo. M
reply by the author on 27-Aug-2023
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Hi Debi, pain can be debilitating, and it can affect everything that a person does, including their thinking ability. It's difficult for anyone to understand or comprehend another person's pain. Your poem reads and flows well, and your message is clear. Of special note:
think of rainbows instead of the rain
(Life is better when we can look on the brighter side, no matter how hard or difficult it may be.)
Well done. I love the rainbow photo. As this is a contest entry, I wish you good luck. Xo. M
Comment Written 27-Aug-2023
reply by the author on 27-Aug-2023
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Thanks so much Margaret. I am so thankful to you and so many others that are so good for me to divert my pain elsewhere, along with the writing therapy. Right now it is a godsend for me. Thanks so much for the lovely six stars and all the wonderful comments. And thanks for being part of my bright side, my sweet SOTU.
Comment from nomi338
The comfort that follows the rain is of course the beautiful rainbow. In like manner, the comfort you feel when whatever pain you might be feeling leaves you is very welcome.
reply by the author on 27-Aug-2023
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The comfort that follows the rain is of course the beautiful rainbow. In like manner, the comfort you feel when whatever pain you might be feeling leaves you is very welcome.
Comment Written 27-Aug-2023
reply by the author on 27-Aug-2023
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Thanks so much, Nomi . It was hard for me to write, to admit that that is my life. I hope God will always me to look on the bright side, but as I saw the disease taking more and more, I needed to write this to get it out and as always, it did help some. Writing here and interacting with you and others is a godsend. Thank you for being part of that for me. You, my BB are so very special.
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May the God of all comfort grant you comfort and ease from the pain you are currently suffering. In the name of his dear son Jesus the Christ, amen.
Comment from barbara.wilkey
Thank you for sharing this contest entry with us. I do understand. One of my daughter in laws has developed some sort of rhuematory arthritis, I don't remember the official name, but she's in constant pain. Some days are worse than others. She learning to live with it. Good luck with the contest. You are always in my prayers.
reply by the author on 27-Aug-2023
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Thank you for sharing this contest entry with us. I do understand. One of my daughter in laws has developed some sort of rhuematory arthritis, I don't remember the official name, but she's in constant pain. Some days are worse than others. She learning to live with it. Good luck with the contest. You are always in my prayers.
Comment Written 27-Aug-2023
reply by the author on 27-Aug-2023
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Thanks so much, Barb . It was hard for me to write, to admit that that is my life. It has taken so many claimed many organs already. Yes, RA is actually a part of lupus. The weird thing is you have to have RA to have lupus, but you don't have to have lupus to have RA.
I hope God always alloys me to look on the bright side, but as I saw the disease taking more and more, I needed to write this to get it out and as always, it did help some. Writing here and interacting with you and others is a godsend. Thank you for being part of that for me. You are so special.
