Jonathan's Story
Viewing comments for Chapter 27 "Nothing else we can do ..."Our fostering journey with a severely disabled boy
26 total reviews
Comment from royowen
I guess when all affective medical help is at its end, only a miracle will work, and this is when the Father decides. I remember my father being totally incapacitated by a stroke, after 6 months of praying, I said to God, if you won't heal Him, take him, within two days he was dead. Yes, my poor father appeared to have full cognition, and was suffering, he couldn't speak or move. And that's what I mean about what our role as sons is, well done Wendy, blessings Roy
reply by the author on 03-Apr-2024
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I guess when all affective medical help is at its end, only a miracle will work, and this is when the Father decides. I remember my father being totally incapacitated by a stroke, after 6 months of praying, I said to God, if you won't heal Him, take him, within two days he was dead. Yes, my poor father appeared to have full cognition, and was suffering, he couldn't speak or move. And that's what I mean about what our role as sons is, well done Wendy, blessings Roy
Comment Written 02-Apr-2024
reply by the author on 03-Apr-2024
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Thank you Roy. Yes, I understand - my brother was in a similar situation a couple of years ago. Being trapped in a non- functioning body is one of the most difficult situations there can be.
Wendy
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Good job
Comment from Mintybee
Wow, what an intense story. You mix medical facts and emotional concerns well. You tell the story in a way that's compelling, personal, and empathetic. I'm glad the medical professionals took Jonathan's health and comfort seriously.
Mintybee
reply by the author on 03-Apr-2024
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Wow, what an intense story. You mix medical facts and emotional concerns well. You tell the story in a way that's compelling, personal, and empathetic. I'm glad the medical professionals took Jonathan's health and comfort seriously.
Mintybee
Comment Written 02-Apr-2024
reply by the author on 03-Apr-2024
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Thank you so very much for your very kind words and thoughtful review! I very much appreciate the six stars. I can?t express how much they mean to me.
Wendy
Comment from Begin Again
It's tough when anyone is ill but when it is a child, especially one who can't respond in the normal way, I think our pain is greater, praying we make the right decisions for them. As always, my heart is with you in each and every journey you share with us.
Hugs, Carol
reply by the author on 03-Apr-2024
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It's tough when anyone is ill but when it is a child, especially one who can't respond in the normal way, I think our pain is greater, praying we make the right decisions for them. As always, my heart is with you in each and every journey you share with us.
Hugs, Carol
Comment Written 02-Apr-2024
reply by the author on 03-Apr-2024
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Thank you Carol. A very caring review. By this time he was, forty-one, quite unbelievable that he had lived this long. When we got him at nine years old, they weren?t sure if he would make it to becoming a teenager! Nearly at the end of my writing now.
Wendy
Comment from T B Botts
Hello Wendy,
thanks for sharing this incredible story. I've read it from the start and gone through the ups and downs with you and Jonathon, as he's endured unbelievable hardship and just plain indifference and incompetence. There are very few people in this world who would go to the lengths that you and your family have to advocate for another person. I applaud you all for the great love you've shown, and by your actions, those who have come in contact with Jonathon can see a reflection of Jesus on the earth.
Have a blessed evening gal.
Tom
reply by the author on 03-Apr-2024
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Hello Wendy,
thanks for sharing this incredible story. I've read it from the start and gone through the ups and downs with you and Jonathon, as he's endured unbelievable hardship and just plain indifference and incompetence. There are very few people in this world who would go to the lengths that you and your family have to advocate for another person. I applaud you all for the great love you've shown, and by your actions, those who have come in contact with Jonathon can see a reflection of Jesus on the earth.
Have a blessed evening gal.
Tom
Comment Written 02-Apr-2024
reply by the author on 03-Apr-2024
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Thank you so much Tom. I have greatly appreciated your ongoing commitment to and interest in this story. It?s been very encouraging! It is actually really good (but also very hard) to think back over everything to do with his life. It strikes me now as a shocking story, all the different things he (and we) had been through. At the time, it was just "life", and we all just managed the best way we could. Thanks again for your very supportive words.
Wendy
Comment from LJbutterfly
Jonathan has bravely struggled and suffered his entire life. But God blessed him with an extremely loving and caring family that advocated for him his entire life and let him know he was never alone. Much of this story has broken my heart and I've often paused reading in order to fight back tears. Thank you for this inspiring story that proves there are actually God appointed earth angels.
reply by the author on 03-Apr-2024
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Jonathan has bravely struggled and suffered his entire life. But God blessed him with an extremely loving and caring family that advocated for him his entire life and let him know he was never alone. Much of this story has broken my heart and I've often paused reading in order to fight back tears. Thank you for this inspiring story that proves there are actually God appointed earth angels.
Comment Written 02-Apr-2024
reply by the author on 03-Apr-2024
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Wow, thank you so much for this beautiful and very encouraging review. I too have become quite emotional at times, during the writing, as I?ve thought about his (and our) various experiences. Many thanks too for the wonderful six stars. They mean a great deal to me, more than I can express.
Wendy
Comment from GWHARGIS
It did my heart good to know that this team was on Jonathan's side and your side. That's all it takes really. To show both of you that he is a priority. His life matters. I'm so glad you are going over this. It shows the continuing hurdles in his life and therefore yours. Great post. Gretchen
reply by the author on 03-Apr-2024
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It did my heart good to know that this team was on Jonathan's side and your side. That's all it takes really. To show both of you that he is a priority. His life matters. I'm so glad you are going over this. It shows the continuing hurdles in his life and therefore yours. Great post. Gretchen
Comment Written 02-Apr-2024
reply by the author on 03-Apr-2024
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Thank you Gretchen. Yes, when I wrote a few stories about this last year, no one had any idea of his backstory, which was much more complex than anyone could have imagined. Thank you so much for your compassionate review.
Wendy
Comment from barbara.wilkey
I know this happened previously but as I read, I was praying for Jonathan. It seemed so real, like right now to me. Thank you for sharing.
Our son Joe had had a spontaneous lung collapse when he was in his early twenties. (son, Joe)
reply by the author on 03-Apr-2024
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I know this happened previously but as I read, I was praying for Jonathan. It seemed so real, like right now to me. Thank you for sharing.
Our son Joe had had a spontaneous lung collapse when he was in his early twenties. (son, Joe)
Comment Written 02-Apr-2024
reply by the author on 03-Apr-2024
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Thank you so much, Barbara. I am glad it was stillreal, although written differently this time. I appreciate your review and suggestion too.
Wendy
Comment from Jim Wile
I don't know how all of you coped so well with this very stressful situation. It is just wonderful there was such a caring medical team in place this time who seemed to truly understand what Jonathan meant to his family. What an immense difference from his previous caregivers who were hardly worthy of the term.
Those two mysterious incidents of the loss of oxygen flow were worrisome and makes you wonder if someone was attempting to play God, but aside from that, Jonathan's care seemed to be impeccable, and everyone was trying their best. What more could you ask for?
This is such a compelling story which shows the full gamut of human caring and emotion, Wendy. - Jim
reply by the author on 03-Apr-2024
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I don't know how all of you coped so well with this very stressful situation. It is just wonderful there was such a caring medical team in place this time who seemed to truly understand what Jonathan meant to his family. What an immense difference from his previous caregivers who were hardly worthy of the term.
Those two mysterious incidents of the loss of oxygen flow were worrisome and makes you wonder if someone was attempting to play God, but aside from that, Jonathan's care seemed to be impeccable, and everyone was trying their best. What more could you ask for?
This is such a compelling story which shows the full gamut of human caring and emotion, Wendy. - Jim
Comment Written 02-Apr-2024
reply by the author on 03-Apr-2024
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Thank you so very much Jim. I appreciate your very caring words, and yes, the medical staff were, in general, outstanding. Those two incidents? I will always wonder how they could happen ....
Thanks again, Jim I appreciate your ongoing interest.
Wendy
Comment from Verna Cole Mitchell
I cannot imagine being in Jonathan's position or yours. God has give him such patience and desire to live and you such a loving, giving heart. He is blessed to have such a wonderful adopted family. Your editing is always great, but I did see one little error in the 8th paragraph: Yet all the staff all showed . . . I thought you probably meant the second "all" to be "always." You are great at giving credit where credit is due, and these doctors and most of the nurses put his earlier care givers at the home where he was to shame.
reply by the author on 03-Apr-2024
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I cannot imagine being in Jonathan's position or yours. God has give him such patience and desire to live and you such a loving, giving heart. He is blessed to have such a wonderful adopted family. Your editing is always great, but I did see one little error in the 8th paragraph: Yet all the staff all showed . . . I thought you probably meant the second "all" to be "always." You are great at giving credit where credit is due, and these doctors and most of the nurses put his earlier care givers at the home where he was to shame.
Comment Written 02-Apr-2024
reply by the author on 03-Apr-2024
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Thank you so much Verna. A lovely review, and I also appreciated your excellent eyes. It was meant to read "? all the staff always showed ?", so I appreciate the pick-up, and I have fixed it.
Wendy
Comment from Debbie D'Arcy
Oh Wendy, what strength and belief on display both from Jonathan and yourself! I shudder at the sheer thought of what you all went through. This must have been like going through hell. And Jonathan's physical pain was yours, I've no doubt. All I can think, right now, is how you recover from this kind of trauma. How long does it take to resume any kind of normality? This, as I've said before, is a remarkable, life-affirming story of fortitude and love. It makes me wonder how I would possibly have coped and I'm not exactly filled with confidence. Thank you for sharing this incredible story, Wendy. Debbie xx
PS I would have written more but my computer is having a real wobbly and losing all my text. Hopefully, this will arrive in one piece.
what you all went through
reply by the author on 03-Apr-2024
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Oh Wendy, what strength and belief on display both from Jonathan and yourself! I shudder at the sheer thought of what you all went through. This must have been like going through hell. And Jonathan's physical pain was yours, I've no doubt. All I can think, right now, is how you recover from this kind of trauma. How long does it take to resume any kind of normality? This, as I've said before, is a remarkable, life-affirming story of fortitude and love. It makes me wonder how I would possibly have coped and I'm not exactly filled with confidence. Thank you for sharing this incredible story, Wendy. Debbie xx
PS I would have written more but my computer is having a real wobbly and losing all my text. Hopefully, this will arrive in one piece.
what you all went through
Comment Written 02-Apr-2024
reply by the author on 03-Apr-2024
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Thank you Debbie. I think it all arrived, but there was a lot of blank space at the bottom. I appreciate your lovely words very much. Yes, it was a dreadful time, but I tried to keep going with my normal routine as far as possible, eg child minding all day Tuesday but visit J in the evening, Wednesday morning Therapy Dogs at the hospital across the road, then take Sunny home, then back to J?s hospital for the afternoon, after a quick lunch, etc., juggling each day. It seemed to help emotionally to keep some semblance of normality.
It was extremely exhausting though! Thank you again Debbie, I greatly appreciate your ongoing interest and support.
Wendy